Posted in Early Teen Years

Silence and Darkness…Evan Recalls Life as a Baby with Autism

This video was filmed in early 2011.  Evan was almost 12 and Brian had just turned 14.  We were in a hotel room in Atlanta, having tagged along with Ed one of his business trips. 

We were playing in the hotel room when Evan mentioned that he could recall that when he was little, he couldn’t see or hear.  I wanted to capture Evan’s thoughts on the matter, and thus turned on the video camera and “interviewed” him.  In typical big brother razzing little bro fashion, Brian playfully teases Evan, calling him a “liar liar”.  Evan has the best memory of anyone I’ve ever known, and wasn’t much on lying (at least not at that age…all bets were off as an older teen).  I think he was being for real.  And how scary it must have been for him!


I am an Autism parent, an Aspie, and married to an Aspie, Ed, my husband of 24 years. I’m writing to share our story, which is the real-life drama of raising two boys on the autism spectrum. Our story contains tragedy, comedy, lots of action, conflict and adventure. But it’s also the story of the evolution of an autism parent. For as much progress as my sons have made, I may have made more. I’ve become who I am today through their struggles and triumphs. People have told me over the years that I am a hero and role model. I don’t feel that way. My superheroes are Brian and Evan, and maybe my superpower has been in raising them. They are true trailblazers and the wind beneath my wings.

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.